Titlebook: Research Partners with Lived Experience; Stories from Patient Andrew Stranieri,Grant Meredith,Selena Firmin Book 2024 The Editor(s) (if app

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Zebras Have Spots,ted in many more common diseases and here the author describes her particular battle with inflammatory bowel disease, wondering aloud whether it is part of her primary condition. This informative story is told with candour and shades of dark humour, giving the reader a front-row seat to life with a rare disease in Australia.

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How Lived Experience Mediated My Gold, Ribbons, Puzzles and Morals Research Motivations: A Reflectihat identify intuition and cognition as two processes that come together to explain how key events and situations in life have influenced my decisions. This illustrates how critical events have mediated the ., ., . and . factors that were motivating my research efforts.

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Who Punched Me in the Back? Becoming a CKD Researcher,ur body becomes overloaded with fluid, and you suffer from headaches, migraines, nausea, vomiting, and most days, it feels like someone punched you in the back, amongst other symptoms. Like many other Australians, it was too late when I was diagnosed with CKD. My kidney function had reduced to 18%.

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Zebras Have Spots,he age of 43. Her diagnosis of familial cold autoinflammatory syndrome (one of three cryopyrin-associated periodic syndromes) only came following information provided by another family member. Continued post-diagnosis frustration with medical practitioners motivated her to complete a Bachelor of Sci

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My Journey: From Patient to Researcher with Lived Experience,l, and societal. Although I now see myself as a citizen living life to the fullest, it took a long time, and I still struggle, to free myself from the feeling of “being the disease.” After getting involved in several patient organizations and committees, I saw that there was still much to do about m

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Is Doctor Google our Best Choice for Healthcare Information Recommendations? A Duty of Care to Imprrm better decision-making of healthcare consumers. Relatives, friends, and carers are often sharing the stress and responsibility of looking after the healthcare of consumers. They feel personally responsible for meeting not only physical, but also information needs of people they care for. With the

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