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Needs, Tools, and the State of Research,re likely to contribute more funds than they can afford, retire early, forego social lives, report emotional distress, and neglect their own physical health by foregoing exercise, proper nutrition, and medical and dental care. For the most part, they need more support than they are getting. They nee

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Moderately Intensive Grandparentingnce. When children have disabilities, these trends are magnified because families have fewer childcare options, more health care expenses, and more care work demands. The dearth of supports for families of children who have disabilities often means that grandparents do even more. As cumulative inequ

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Managing Adult Childrend whether they are getting their fair share. Indeed, some families face sibling rivalry among the adult children. Sometimes sibling rivalry is caused by disapproval, the feeling that one adult child is not sufficiently parenting their own children and taking advantage of grandparental supports. Othe

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Never Ending Care Workthey look to the future, nearly all expect to continue caring for their grandchildren with disabilities for as long as they are able. Only a few expect their grandchildren to become independent adults; most are uncertain what the future holds. The most common plan is to remain available as needed. F

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Rethinking Work and Retirement. Some are clinging to their jobs as a strategy to reduce grandchild care. Some are clinging to their jobs because they need the income to help pay for necessities for the younger generations or to recover losses they experienced due to the Great Recession. Others have already retired, thus when the

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Emotional Ups and Downsluctant to accept the diagnoses and to let go of the visions they had of grandparenting. Some are concerned about the impact on their own health, their marriages, and their adult children’s wellbeing. Some do not have sufficiently good health or deep enough pockets to provide the amount of care and