Titlebook: Biobanks and Tissue Research; The Public, the Pati Christian Lenk,Judit Sándor,Bert Gordijn Book 2011 Springer Science+Business Media B.V.

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What’s Wrong with Forensic Uses of Biobanks?imply that confidential information about donors’ – as well as their relatives’ – propensity to develop certain diseases is collected and put at researchers’ – or State authorities’ – disposal. Finally, it is also argued that all these problematic aspects of forensic biobanking, as they were express

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Anonymity and Privacy in Biobankingamework, the authors analyze numerous models for regulation, with examples mainly from the Central and Eastern European region. The overview of the functions of anonymity reveals also to what extent anonymity can be regarded as an efficient solution for the regulatory challenges. The authors sketch

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https://doi.org/10.1007/978-1-349-27722-3for which broad consent was initially secured. Second, we discuss the possibility to waive consent in research use of biological materials that were initially collected for non-research purposes without consent for research use. Third, we address three alternative regulatory regimes allowing turning

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https://doi.org/10.1007/978-1-349-27722-3suspicious. We propose that such suspicions of ethical failure should be reconsidered by presenting two possible solutions. Firstly we argue that the epistemological difficulty might be partially solved by adopting the “waiver model” of informed consent. Secondly, we put forward an argument that ind

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https://doi.org/10.1057/9780230378629imply that confidential information about donors’ – as well as their relatives’ – propensity to develop certain diseases is collected and put at researchers’ – or State authorities’ – disposal. Finally, it is also argued that all these problematic aspects of forensic biobanking, as they were express